Resources for People and Their Family That Has Parkinson's

At that place are many types of organizations that offer diverse types of resources, services, data and support.

Contact the Parkinson's Foundation Helpline

Your first call tin always exist to the Parkinson'due south Foundation Helpline:ane-800-4PD-INFO (473-4636). Trained Parkinson'south illness information specialists provide upwardly-to-engagement information most Parkinson's, referrals to healthcare professionals, emotional support, community resources and a wide variety of complimentary publications. The Helpline is open Monday through Friday, 9:00am to half-dozen:00pm ET. You lot can also e-mail united states any time athelpline@parkinson.org.

I am looking for data and resources related to:

• Aging
• Caregiving
• Healthcare professionals
• Government programs
• Medication assistance
• Financial, legal and insurance issues
• Activities of daily living
• End-of-life-planning

Aging Resource

These organizations offer information nigh services for older adults.

• Brotherhood for Aging: 800-96-ELDER (800-963-5337)
• Health in Aging: 800-563-4916
• National Association of Expanse Agencies on Crumbling: 202-872-0888
• Side by side Avenue: articles about aging, health and caregiving

Caregiver Resources

These groups provide a range of options for caregiver education, back up and networking.

• AARP Caregiving Resources Middle: 877-333-5885
• ARCH National Respite Network and Resource Heart: 919-490-5577
• Caregiver Action Network: 202-454-3970; Check out the Family Caregiver Toolbox
• Connecting with Caregivers, from theAmerican Psychological Association
• Family Caregiver Alliance: 800-445-8106
• Family unit Caregiver Council
• Lotsa Helping Hands
• National Adult Day Services Association: 877-745-1440
• National Brotherhood for Caregiving: 301-718-8444
• National Caregivers Library
• Next Pace in Care
• Well Spouse Association: 800-838-0879

Healthcare Professionals

There are many different types of healthcare professionals that can assistance you with dissimilar aspects of your caregiving journey.

• Aging Life Care Association (formerly National Association of Professional Geriatric Care Managers): 520-881-8008
• Find a Social Worker*
• Discover a Therapist
• Visiting Nurse Associations of America
• Find a Concrete Therapist* (The search will notation physical therapists who have specialized certifications; choose someone with a specialty in geriatric or neurological rehabilitation)
• Find a Spoken language-Linguistic communication Pathologist*
• Notice an LSVT-Certified Clinician(Yous tin search LSVT LOUD speech-language clinicians and LSVT BIG physical and occupational therapists)

*To find out if there are centrolineal health professionals nearly you who have completed the Centrolineal Team Training for Parkinson's (ATTP) plan, call our Helpline at 1-800-4PD-INFO (473-4636). ATTP is a Parkinson's Foundation program that helps allied health professionals (physical, occupational and spoken language-language pathologists, social workers, nurses, music therapists and others) develop a deeper understanding and appreciation of the skills needed to help people living with PD.

U.S. Authorities Agencies

You and your loved one might be eligible for diverse government programs. Telephone call or visit their sites for data and to find out if you lot qualify.

• Administration on Crumbling
• Centers for Medicare and Medicaid Services: 800-MEDICARE (800-633-4227)
• Eldercare Locator: 800-677-1116
• Social Security Assistants: 800-772-1213
• National Plant on Aging: 800-222-2225
• Veterans Administration: 800-827-1000

Medication Assistance

There are full general medication aid programs every bit well as programs specifically for depression-income individuals and families.

• Medicare Savings Programs: 800-MEDICARE (800-633-4227)
• NeedyMeds: 800-503-6897
• Partnership for Prescription Assistance
• State Pharmaceutical Aid Programs
• Supplemental Security Income Benefits: 800-772-1213

Some pharmaceutical companies provide medication to people who cannot afford it.RxAssist offers a database of these patient assist programs.

People with neurogenic orthostatic hypotension (nOH) may be eligible for financial aid related to their treatment through a program administered past theNational Organization for Rare Disorders (NORD). For information, contact NORD at noh@rarediseases.org or 844-827-8743.

ThePatient Admission Network Foundation is an contained, national 501 (c)(iii) organization dedicated to helping federally and commercially insured people living with life-threatening, chronic and rare diseases with the out-of-pocket costs for their prescribed medications. PAN provides the underinsured population access to the healthcare treatments they demand to best manage their conditions and focus on improving their quality of life. Since its founding in 2004, PAN has provided most i 1000000 underinsured patients with over $ii.6 billion in financial aid, through nearly 60 disease-specific programs.

Financial, Legal and Insurance Issues

These groups tin can assist yous navigate the unique, complex issues facing seniors and people with disabilities and help you access crucial services (such equally, affordable healthcare).

• Medicare Rights Center: 800-333-4114
• Find a Financial Planner: 800-322-4237
• National Academy of Elder Constabulary Attorneys
• Patient Advocate Foundation: 800-532-5274

Activities of Daily Living

There are many companies that offering products to help with activities of daily living (ADLs), including eating, bathing, dressing, toileting, transferring/walking, and personal hygiene. These can range from small, adaptive products such as weighted utensils to larger mobility equipment like walkers and wheelchairs. These products may be covered by Medicare, with a medico'southward order and if  deemed medically necessary. In this case, they are referred to every bit durable medical equipment (DME).

These  are just a few of the many companies that offer such equipment and other products to help with ADLs. Before buying, talk to a skilled therapist, such as an occupational or physical therapist, to find out what equipment is right for your loved i.

• Buck & Cadet:800-458-0600
• Independent Living Aids, LLC: 800-537-2118
• In-Step Mobility Products, Inc.: 800-558-7837
• Maddak Inc., Alive Independently: 800-443-4926
• MagnaReady: 866-635-8866
• National Seating and Mobility: 615-595-1115
• Reliable Medical Supply, Inc.: 763-255-3800

End-of-Life Planning

These groups offer resources, guidance and support to help you plan ahead and provide intendance.

• Crumbling with Nobility: 800-537-2118
• National Hospice and Palliative Intendance Organization Caring: 800-658-8898
• National Physician Orders for Life-Sustaining Treatment (POLST) Organization: 503-494-4463
• The Conversation Projection

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Source: https://www.parkinson.org/Living-with-Parkinsons/For-Caregivers/Caregiver-Resources

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